About Me

On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.

Saturday, July 14, 2012

Heading home!!!

Got to talk to Dr. Frost a little more today. He let us know that the things we saw were seizures. It makes me feel a little better knowing I'm not crazy and making things up. MRI and spectroscopy results came back normal. The MRI did show that the seizures are now coming from the right side of the brain rather than all over. This opens up a few more medicine options. Still waiting on the results of the genetic testing.
We are still uncertain as to what the future holds for Jayen. We do believe that as Jayen's brain grows and matures his seizures will continue to change. We will probably have to go back to Minnesota and do another EEG. But for now we can bust out of this joint and pick up Dalan. We miss him horribly and can't wait for all of us to be home together.

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