About Me

On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.

Thursday, October 18, 2012

Fifth Diastat

Jayen just had a convulsive seizure. Although it was horrific to watch, the question I got afterwards was just as bad. Dalan asked me if Jayen was going to die because of his seizures. Of course I tried to comfort him and tell him of course not, but the question made me start to wonder what is in store for him. What will his life be like? Will this ever end?

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