About Me

On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.

Monday, November 26, 2012

Weaning off Vimpat

Our weaning process is not going well. When we left Dr. Frost's office, he wanted us to start taking Jayen off the Vimpat and Klonopin. We started with the Vimpat by half pill once a day. On the 14th we were 1/2 pill in the morning and full pill at night. Then on Monday the 19th and every proceeding Monday we decrease another 1/2 pill. Jayen's last seizure was on the 13th (the day we were in to see Dr. Frost) but since starting the decrease He has had one on the 18th, 21st, and 24th. I just don't know what to do. Still waiting to talk to the nurse and see if we continue with the decrease. I hate waiting!

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