About Me

On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.

Wednesday, January 9, 2013

Decreasing Klonopin

Started decreasing the klonopin this morning. Hoping this doesn't trigger more seizures like the last taper. We tried right before Christmas to taper off of the Vimpat and had a horrible setback. Once we are off the klonopin we are probably going to add Felbatol. That is one of the possibilities and the one that Dr. Frost wants us to start with. Let's see how this goes!

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