About Me

On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.

Wednesday, January 16, 2013

One down, one up!

Today we are completely off Klonopin. We have had quite a long run with you and we are so glad to be giving you up! We talked to Dr. Frost's office today and we will be adding Felbamate as soon as we can get some baseline labs done. With the new medicine we have to watch his kidney functions and his bone marrow. SCARY!!!! I guess we will go back to doing routine lab work. (As if I didn't have enough driving around to do)

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