About Me

On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.

Monday, May 6, 2013

FINALLY STARTING ONFI!

I have been waiting for this drug for months now. We have tried all the other drugs Dr. Frost wanted us to try and now we finally get to the one mommy was hoping for. I had heard so many great things about Onfi. I really hope this is Jayen's miracle drug too. Started it tonight. Praying for some seizure relief!!

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