About Me

On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.

Saturday, May 18, 2013

We love ONFI!!!! But still another seizure

Well 17 days seizure free is a great start! I will call Minnesota on Monday and see what we want to do, but I am so happy we are getting somewhere. I knew this was going to be a good medicine. I should have pushed for it sooner like I wanted to. I need to start going with my gut a little more. Someday I will be able to stand up for you buddy and be your biggest voice!

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