What's his outcome now?

Day three was yesterday and on cue Jayen had another seizure. This was a morning seizure so it was slightly different, but non the less still a seizure. Today I am a little down and not completely sure why. I know it didn't help reading this from one of the special needs groups I belong to... "Cole passed away Tuesday morning. He had a massive seizure and aspirated. My husband checked on him and he was fine and I went in 20 minutes later and he was gone. We held him in our arms for a short time but will hold him in our hearts forever." I'm so saddened for this family and so worried whether this will be our family's fate as well. Sudden Unexplained Death is Epilepsy (SUDEP) is common in children with epilepsy. I'm a little comforted by the fact that he mostly wakes and gets out of bed before he seizures occurr, that we know of. I'm just so sad that we have gone to the extreme of extremes and still no help for my little man. What is in store for his life? Are we ever going to get these things under control? Prayers for Cole's family and all the families dealing with epilepsy!