About Me

On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.

Tuesday, September 30, 2014

Do I stay or do I go now?

Today was one of the harder days we've (I've) had since daddy left. So much is left on my shoulders. Every time daddy leaves something goes wrong, and this time is no exception! I turned in our paperwork for the appeal to Arizona yesterday. A part of me wanted to loose it on the way there. I'd love to stay here. I'd love to be close to family. I'd love to continue the services Jayen is currently receiving. I LOVE NEBRASKA, but Nebraska could mean one year without Matt. We CAN'T do one year without him.

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