About Me

On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.

Tuesday, September 23, 2014

Maybe next week?

Still waiting on surgical conference decision. Jayen was not presented this week. I put a call in to Carol to see what our next plan is. Jayen has had seizures three times in a week. They are more intense and are scarily close to the 10 minute mark every time. I'll have to continue calling until we get the next plan.

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