This blog is to share "our crazy journey" dealing with Jayen's Infantile Spasms. Our struggles and triumphs, all in one place for family and friends and anyone else dealing with this catastrophic type of epilepsy.
About Me
- Jayen Hochstein
- On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.
Sunday, June 27, 2010
I have toes! Who knew?
Jayen was playing in his crib this morning waiting for someone to come get him when he finally realized he had toes. These crazy things have been there the whole time. We have been working on getting him to find his toes for weeks now. He was rolling around just holding onto them. He is making so much progress!
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