Wow, mommy has been busy the last couple of days. I have been researching pediatric neurologists and epileptologists non-stop for three days now. I have really been contemplating our recent medicine changes and the current course of treatment. I talked to Dr. Toth and asked if/what I had to do to get a second opinion. I was so happy when he gave me the ok and said he would get the ball rolling on a referral. There are just so many different decisions to make now.
I was told about a doctor here in Omaha who is seeing some friend's kids. He came highly recommended. When we tried to book an appointment with him we were told he doesn't see pediatric patients. I was a little disappointed. Our second and third options are the Mayo clinic and the Minnesota Epilepsy Group. After meeting with Dr. Toth today he is going to do a little checking on both to see who has a slight edge on Infantile Spasms. It looks like we are going to be headed to Minnesota. (As long as insurance accepts our request!) We are saying prayers that we will be lead in the right direction and that everything goes smooth.
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