This blog is to share "our crazy journey" dealing with Jayen's Infantile Spasms. Our struggles and triumphs, all in one place for family and friends and anyone else dealing with this catastrophic type of epilepsy.
About Me
- Jayen Hochstein
- On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.
Tuesday, March 22, 2011
Still having seizures so upping meds. Jayen is currently take 4 Topamax pills twice a day, 2 Depakote twice a day, Lamictal is a very slow progression to 4 pills twice a day, and now we upped the Klonopin to 2mL 3 times a day. Jayen is going to be very sleepy from all these meds. I wish he was his happy self again. I don't like seeing him all "drugged" up.
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