Mommy is so excited that we get to have a birthday party at the pumpkin patch. Since having a baby in the fall, I've always wanted to have bonfire party at Vala's.
After watching the Husker game and taking a quick nap, we got all dressed up in our costumes and were ready to go. Daddy was Superman, Mommy was Captain America, Dalan was Spidermand and Jayen was Ironman. We were one superhero family.
We played on the slides, in the corn, and showed everyone why we love Vala's, before heading over to the bonfire. It was so fun to have our family and friends there. It was one of our last times with the Parker-Lopez's before they moved to Arizona. We will miss them horribly.
At the bonfire we roasted hotdogs, smores, and had cake and cupcakes. The kids had so much fun playing on the wooden train setfand when the sun went down the glow sticks were a big hit. Right before heading home we took a train ride with Madison, Hunter, Morgan, Tom, Tanya, Allissa, Isaac, Reganne, mom, dad, Dalan, and Jayen. What a great birthday party for a special little ALMOST two-year-old!
This blog is to share "our crazy journey" dealing with Jayen's Infantile Spasms. Our struggles and triumphs, all in one place for family and friends and anyone else dealing with this catastrophic type of epilepsy.
About Me
- Jayen Hochstein
- On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.
Saturday, October 29, 2011
Monday, October 3, 2011
Just what I wanted
I was supposed to call the doctor on Wednesday but things have kind of gotten away from me. When I finally got to it today, I got the greatest news! Jayen has been doing so well on the decrease of Topamax and the increase of Lamictal that the doctor is ok with us coming completely off the Topamax!!! We will do this very slowly, one pill a week. It will take us 4 weeks but it will be so worth it. I am so excited but so nervous at the same time. Anytime we change meds we are at an increase for seizures. Praying for good results!
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