This blog is to share "our crazy journey" dealing with Jayen's Infantile Spasms. Our struggles and triumphs, all in one place for family and friends and anyone else dealing with this catastrophic type of epilepsy.
About Me
- Jayen Hochstein
- On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.
Monday, July 9, 2012
Finally got a return call
After more than a week of waiting for the doctors office to call with a plan we finally have one. I'm not sure if it is one we like or not, but Dr. Frost would like us to go back to Minnesota. He wants us there Wednesday. I responded with an "Are you kidding me?" and a "good luck getting insurance to accept that referral in one business day". Now I have to run around getting our PCM to fill out the referral paperwork, then head to referral management to see if they can process it stat, then if it even gets accepted in time I will have to go to patient travel. That doesn't include packing bags, figuring out what to do with Dalan, make arrangement for Matt's mowing jobs, get snack and things together to keep a two year old busy in the car for 7 hours, and remember my head in the process. I guess I better get busy!!!
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