This blog is to share "our crazy journey" dealing with Jayen's Infantile Spasms. Our struggles and triumphs, all in one place for family and friends and anyone else dealing with this catastrophic type of epilepsy.
About Me
- Jayen Hochstein
- On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.
Tuesday, July 10, 2012
I guess we are going
Matt and I have been bugging the poor ladies at referral managment every half hour to see if we are going or not. Finally at 3:50 we got the word. Matt got off work at 4, we PACKED the car and headed to Sioux City to meet my mom. Between my parents and my brother and sister-in-law Dalan will be kept busy. We really didn't want to leave him and are so heartbroken but we know it would be best. Love you buddy and have a great time!!!
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