About Me

On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.

Sunday, June 30, 2013

Had to wait?!

Of course he had to wait until mom and dad got home to have another seizure. Glad he didn't have one when we were gone, but not happy he has them when we are back. AHHHHHHH I HATE SEIZURES!

Wednesday, June 12, 2013

waiting, waiting, waiting...

Mommy just told daddy yesterday that if Jayen didn't have a seizure before we go they go on vacation she would probably worry about it the whole time! Well, I guess I can worry less. Jayen had another seizure this morning. Waiting to hear back from Dr. Frost's office about what they would like to do.

Thursday, June 6, 2013

Best of friends! Worst of Enemies?

About a week ago Matt's sister, Theresa took Jayen out for the day. It was so nice to be able to get things done around the house without the tornado coming behind you and messing it back up. Jayen needs constant attention and supervision. I feel like all day long I am redirecting him. He is always messing with his brother or sister, so someone else having him was a blessing. I was surprised, shocked even, when Dalan started moping around the house. He was "BORED" without Jayen. Oh how they fight all day but truly love eachother.
Well it is even funnier now that Dalan is in a pre-Kindergarten summer school program and is gone all day. I have seen the same "BORED" look from Jayen. He is kind of moping around the house in the afternoon. I guess they will always be best of friends, but not so sure about the worst of enemies anymore ;)

Wednesday, June 5, 2013

Crazy Monkeys

Decided to do a last minute zoo trip with daddy. We get so few days with him so a night at the zoo was needed. Guess they feel most at home here.
 


Monday, June 3, 2013

Summer School

Jayen's first day of summer school. New school and he is taking it like a champ! I am so proud of him. Hope we don't have the same toileting issues we did before.
 

Sunday, June 2, 2013

Not excited Jayen had a seizure but excited Allissa was here to give him his diastat. I think we both feel a little more comfortable when the kids stay with her for a week. Thanks 'Lis!!!!

I feel like I am set on repeat

After telling Jayen probably 100 times to cover his mouth when he coughs, look who finally listened! I guess I just need to keep harping about everything else.