About Me

On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.

Monday, October 11, 2010

IS awareness week

This week starts Infantile Spasms awareness week. I want to help raise awareness because I think if it wasn't for our persistence that Jayen would not have been diagnosed as quickly as he was. I still remember the doctors trying to tell me that he was just getting startled. I got out my video camera and recorded Jayen until he had a seizure. I sent it to every doctor and anyone I could think of. I knew it was more than just getting startled. I pray that this does not go undiagnosed in others. The quicker the diagnosis the better the outcome!
Praying for a cure!

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