About Me

On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.

Monday, March 7, 2011

Things have been crazy around here. This crazy journey is no where near over.

Jayen continues to have seizures. We have increased his Topamax twice now and just aren't sure where to go from here. We called the after hours line yesterday and the doctor didn't want to do any more increases until we get some results back from lab. Jayen had some labs drawn today, so we will hopefully hear back from the doctor soon. The medicines can cause problems with his kidney and liver functions so we have to keep a close eye on it. We see Doctor Pavkovic (neurologist) on Wednesday and I have so many questions to ask. I hope I don't forget any of them!!

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