About Me

On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.

Saturday, April 16, 2011

Nothing new today. Still just waiting for a seizure. Talked to the doctor a little more today. He answered a lot of questions. We really don't have a whole lot of answers until he has a seizure. I do feel that our time here is not totally a waste. We have taken Jayen completely off the depakote and and weaning the klonopin.So we have already simplified his medicines and he doesn't seem as "drugged" as he did before. I think we are going to try to give it a couple more days. PLEASE PLEASE PLEASE help us pray for answers. God has a plan and we are trying to understand it. We are giving it up to him and hope he leads us in the right direction.

No comments:

Post a Comment