About Me

On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.

Wednesday, July 11, 2012

Minnesota Epilepsy Group (AGAIN)

We arrived in Minnesota around 2AM plopped our heads on some pillows at a hotel and was so rudely awakened by a bubbly 2 year old. Apparently he got plenty of sleep in the car!
After a well balanced breakfast at McDonalds ;) we checked into the hospital. The moment mommy was most nervous for was finally upon us, getting the wires on. I remember Jayen screaming through the entire process a year ago and having to hold him down. Now he is twice that size and twice as strong. They ended up putting him on a board and strapping him down with a velcro suit. He screamed and cried. Mommy screamed and cried too. I hate when he looks up at you with the eyes that say, "Mommy help me. Why aren't you stopping them? Why are you helping them? Make the hurt go away." And at the same time feeling so helpless. I love you honey and I would never do it if I didn't have to. I'm so sorry!!!

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