About Me

On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.

Tuesday, October 23, 2012

Late night ER visit

It never ends! This poor kid can never catch a break. Jayen was playing outside with daddy and Dalan when he tripped and hit his mouth on the glass from our power meter. Bottom lip was swollen and bruised but the top lip was so scraped you could see the root of his tooth. Went to ER to make sure everything was ok.
 



Thursday, October 18, 2012

Fifth Diastat

Jayen just had a convulsive seizure. Although it was horrific to watch, the question I got afterwards was just as bad. Dalan asked me if Jayen was going to die because of his seizures. Of course I tried to comfort him and tell him of course not, but the question made me start to wonder what is in store for him. What will his life be like? Will this ever end?

Wednesday, October 17, 2012

I hate doctors

I hate doctors, is going to be Jayen's new motto. He was kind of put through the ringer today. We went in to get a wart taken care of on his foot. We have been trying to get rid of it for a couple months now using the bandaid things, but it isn't working. He ended up getting four warts frozen off. We were told one of them was so big it could take two or three more times to take it completely off. I could hear him screaming from the waiting room. Good thing daddy was there to help him. Mommy can't hold him down anymore.
After the wart fiasco we had to go get our flu mists. But apparently Jayen missed the mist cutoff by two weeks and had to get the shot instead. Poor baby. Again had to be held down. I really think his mind is saying "I hate doctors!"

Friday, October 12, 2012

Fourth Diastat

DADDY'S POST...

4 months of seizures longest so far, then gone for a couple weeks and came back this morning. Sorry Jayen. Hope we can get them to stop soon....