This blog is to share "our crazy journey" dealing with Jayen's Infantile Spasms. Our struggles and triumphs, all in one place for family and friends and anyone else dealing with this catastrophic type of epilepsy.
On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.
Mommy taught Jayen how to put his coat on and today he did it ALL BY HIMSELF! He was pushing me away and wanted to do it on his own. I am so proud of him and the look on his face tells he how proud he is of himself! Awesome job Jayen!
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