About Me

On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.

Thursday, September 12, 2013

Seizure while we wait

I called Minnesota on Monday to talk to them about Jayen's Saturday seizure and to see what the plan is. I talked to Bobbi, she took down some info and was going to talk to Carol and Dr. Frost and call me back (I swore she said that afternoon). Well, three days later and I still haven't heard anything. Another seizure this morning so another call from this mommy. What are we going to do?

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