Well we got our second seizure but it was very scary. Jayen is off of all anti-epileptic medications so I'm not sure if that is the reason this last seizure was so intense. Jayen was unresponsive during the seizure which is somewhat typical, but usually he at least attempts the task we are asking. He also started convulsing. He usually has a tremor in his right hand but this was a stiff arm then a continuous jerking of his head. I was very upset. This was a very intense seizure and really took a lot out of him. He slept most of the day away and just wasn't himself when he was awake. I'm very worried about continuing without any medications. This was just too much for his little body (and my very big body) to handle.
Still waiting to hear what the plan is now. Dr. Frost thought we would do the grid stimulation this afternoon and do surgery tomorrow but Dr. Petronio said not until Wednesday. I'm just not sure what the plan is and I don't think anyone else does at this point either. Hopefully we will know more tomorrow!
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