About Me

On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.

Wednesday, August 6, 2014

Someone was praying!

Well although we hate praying for seizures, we were so excited for the one that came this morning! We usually have to wait a lot longer for seizures. This was one of Jayen's typical seizures so we were excited to see what the doctor had to say. Dr. Frost couldn't pinpoint where the seizures were originating from, so we still have a 3T MRI on Friday. Hoping we can leave on Saturday.
 
 
Jayen had a seizure so daddy had to shave!


 
We were so excited to have had some visitors again today! Nikki, McKenna, Jackson Dorn and Jane Gulden. What a special visit. They were on their way back to Mankato from Duluth and decided to make a pit stop to see us. We are so honored they stopped to play. It really helps break up the day and puts a smile on all of our faces.
 
 
 
Crazy nurse Tina was with us again tonight! We really love how Jayen lights up when she is around. We felt comfortable enough to leave for a little bit and even took our new friends out with us. I loved the company and conversation. We even were able to start making a few "degrees of separation" and finding common friends. This has been such a special treat to meet a family from so close to home who is going through what you are going through. I hope we can keep in touch! We will have to meet up at Bonanza next time we are all home! Best of luck with your little girl! She is in our thought and prayers.

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