This blog is to share "our crazy journey" dealing with Jayen's Infantile Spasms. Our struggles and triumphs, all in one place for family and friends and anyone else dealing with this catastrophic type of epilepsy.
About Me
- Jayen Hochstein
- On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.
Saturday, July 30, 2011
Family Vacation
Thursday, July 14, 2011
Ups and downs of being mobile
Friday, July 8, 2011
To walk a mile in your shoes...
Tuesday, July 5, 2011
What a horrible, horrible day!
For A Wonderful Doctor
To earn the title “Doctor” is an honor, it is true....
Fruition of a lifelong dream, achieved by just a few.
It’s a journey that has brought you to this time and to this place,
Where you can make a difference with each challenge that you face.
But, still, the wisdom you acquired each step along the way,
Is not all that defines you as you travel through each day.
For knowledge in and of itself is only just a part...
The thing that makes you specia is your kind and gentle heart.
And when a Doctor cares as much as you “sincerely” do
The world becomes a better place, no doubt, because of you!
Monday, July 4, 2011
Happy Independence Day!
We went to Werner Park to watch the fireworks. What a great display they had. It was nice to sit back and watch them without worrying about anyone hurting themselves. Jayen was pointing at the sky and making oooooo noises. It was so nice to see him interacting like that.